Our Story (seizures in infancy)

Stephen - 4 months old, a few weeks before Christmas
Stephen a few weeks before his first seizure

2 Days before Christmas our 5 month old son was admitted to Connecticut Children’s Medical Center with seizures known as Infantile Spasms. Stephen had been having seizures for 8 days. On the third day, the pediatrician we knew from church thought it was gas.

Over the 8 days symptoms progressed from a shrugging motion in the shoulders to both the shoulders shrugging and legs moving upward towards the chest almost like a tucking motion you’d make to do a somersault. I was concerned that the movement seemed involuntary and didn’t stop when I moved him or changed his position. Then a side to side eye movement started. These episodes only lasted a few seconds at first and then grew longer and longer…

But I’m getting ahead of myself. I called our pediatrician at UCONN on the Friday before Christmas at 2:00 pm. I thought to myself I must sound like a paranoid new mother. Right away the Pediatrician got on the phone with me and he listened to me explain the symptoms, as I’ve described them to you here. At this point the seizures were only a few seconds long, and they were like nothing I’d ever seen or heard of before.

After a nasty confrontation with a wife-beating landlord that seemed far too outrageous for anyone to believe, caught on video like some episode from COPS – I got the idea to use the video function on my digital camera to record what was happening to our son.

Steve and I prodded at our son wondering if it could be something serious.

Our pediatrician says we’ll most likely need an EEG, but come to the office now and I’ll take a look…

You can take a look too – click below

To be continued…   To skip ahead to what’s happening now

You may also like:

picture of me and Stephen
Who I am and Why I’m here
I was induced at 9:00 am and Stephen was born by 6:00 pm. Here he is a hour later, looking like a normal healthy newborn in his brother's arms.
When “Normal” was Normal
school photo, with mural of school mascott "Gaffney Tigers"
A New Year (my 1st blog post)
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