Stephen - 4 months old, a few weeks before Christmas

Our Story (seizures in infancy)

2 Days before Christmas our 5 month old son was admitted to Connecticut Children’s Medical Center with seizures known as Infantile Spasms. Stephen had been having seizures for 8 days. On the third day, the pediatrician we knew from church thought it was gas.

Over the 8 days symptoms progressed from a shrugging motion in the shoulders to both the shoulders shrugging and legs moving upward towards the chest almost like a tucking motion you’d make to do a somersault. I was concerned that the movement seemed involuntary and didn’t stop when I moved him or changed his position. Then a side to side eye movement started. These episodes only lasted a few seconds at first and then grew longer and longer… Read More